Talk:Community advisory board

Looking for sources

Does anyone have a definitive source on community advisory boards? I am looking for a history, a guide to creating one, or a list of the kinds of research in any country which come with a mandate to have a community advisory board. Blue Rasberry (talk) 02:31, 20 March 2012 (UTC)

I started looking for resources, and I think we will either need to narrow the scope/title of the article to be specifically about clinical research, or broaden the article content to include other types of community advisory boards. For example, a Google search turned up the CAB for the New York Public Radio station WNYC as the first listing; the third listing was with the Corporation for Public Broadcasting about federal law mandating CABs for public media; the fourth to the Police Community Advisory Board for Oak Harbor, Washington. Altogether, only four of the first ten hits had anything to do with medicine, and two of those four (at the University of Washington and UC Davis) do not appear related to clinical trials.

How about we change the lede to say that a community advisory board is a group of community members, typically volunteers, who represent the voice of the community in institutional decision making processes. We can have sections to describe different types of CABs, particularly public media (the CPB site, http://www.cpb.org/stations/certification/cert3.html should make a good reference), police accountability, clinical research and any other categories that make sense and can be properly referenced (did you know that Fermilab has a CAB? http://www.fnal.gov/pub/neighbors/CAB/) TechBear | Talk | Contributions 14:05, 28 March 2012 (UTC)

What you are proposing is the way it should be. I hesitate to begin this work though because the CPB cites American law and a specific instance of a community advisory board, and the Fermilab case is again a specific case. I looked some time ago in a Worldcat search at a university to try to find some discussion about the concept of a community advisory board, and I think if we started with a source like that then that might contain an outline of how this article should be. I am not sure if the CPB has a community board because of it being media or nonprofit or both, but I think the non-profit must be part of it, and that might also be the reason for the Fermilab since they do not seem to be doing non-profit management. Is a CAB a check on good stewardship of public resources in this case? I would feel more comfortable asking an expert whether they know of any scholarly write-up on the topic before beginning. Thoughts? Blue Rasberry (talk) 02:52, 29 March 2012 (UTC)

Found sources

I asked a researcher and she helped me. Here is what I have so far.

• Newman, S. D.; Andrews, J. O.; Magwood, G. S.; Jenkins, C.; Cox, M. J.; Williamson, D. C. (2011). "Community advisory boards in community-based participatory research: A synthesis of best processes". Preventing chronic disease. 8 (3): A70. PMC 3103575. PMID 21477510.
• Chené, R.; García, L.; Goldstrom, M.; Pino, M.; Roach, D.P.�a.; Thunderchief, W.; Waitzkin, H. (2005). "Mental Health Research in Primary Care: Mandates from a Community Advisory Board". The Annals of Family Medicine. 3: 70. doi:10.1370/afm.260. {{cite journal}}: replacement character in |first5= at position 5 (help)
• Shubis, K.; Juma, O.; Sharifu, R.; Burgess, B.; Abdulla, S. (2009). "Challenges of establishing a Community Advisory Board (CAB) in a low-income, low-resource setting: Experiences from Bagamoyo, Tanzania". Health Research Policy and Systems. 7: 16. doi:10.1186/1478-4505-7-16. PMC 2702270. PMID 19534798.{{cite journal}}: CS1 maint: unflagged free DOI (link)
• Quinn, S. C. (2004). "Ethics in public health research: Protecting human subjects: The role of community advisory boards". American journal of public health. 94 (6): 918–922. doi:10.2105/ajph.94.6.918. PMC 1448363. PMID 15249289.
• Strauss, R. P.; Sengupta, S.; Quinn, S. C.; Goeppinger, J.; Spaulding, C.; Kegeles, S. M.; Millett, G. (2001). "The Role of Community Advisory Boards: Involving Communities in the Informed Consent Process". American Journal of Public Health. 91 (12): 1938–1943. doi:10.2105/AJPH.91.12.1938. PMC 1446908. PMID 11726369.
• Morin, S. F.; Maiorana, A.; Koester, K. A.; Sheon, N. M.; Richards, T. A. (2003). "Community consultation in HIV prevention research: A study of community advisory boards at 6 research sites". Journal of acquired immune deficiency syndromes (1999). 33 (4): 513–520. doi:10.1097/00126334-200308010-00013. PMID 12869841.
• Buck, D. S.; Rochon, D.; Davidson, H.; McCurdy, S.; Committee of Helthcare for the Homeless--Houston (HHH) (2004). "Involving Homeless Persons in the Leadership of a Health Care Organization". Qualitative Health Research. 14 (4): 513–525. doi:10.1177/1049732303262642. PMID 15068577. This source uses the term "consumer advisory board". It means what other groups call the community advisory board.
• Cargo, M.; Mercer, S. L. (2008). "The Value and Challenges of Participatory Research: Strengthening Its Practice*‡". Annual Review of Public Health. 29: 325–350. doi:10.1146/annurev.publhealth.29.091307.083824. PMID 18173388. This source talks about participatory research and does not use the term "community advisory board".
• Galea, S.; Factor, S. H.; Bonner, S.; Foley, M.; Freudenberg, N.; Latka, M.; Palermo, A. G.; Vlahov, D. (2001). "Collaboration among community members, local health service providers, and researchers in an urban research center in Harlem, New York". Public health reports (Washington, D.C. : 1974). 116 (6): 530–539. PMC 1497380. PMID 12196612.

Blue Rasberry (talk) 22:38, 9 April 2012 (UTC)

List of guidelines

I put a section called guidelines in this article. I actually put a list of guidelines from a United States government report into this section, but I see other lists in the literature. To develop this section, I propose that more lists of guidelines be added until some overlap becomes apparent. At that point, I think that all lists should be merged and then each item on the list have references showing which lists have it as an item. Blue Rasberry (talk) 03:48, 10 April 2012 (UTC)